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Health Reports

Data Disaggregation Fact Sheet – Behavioral Health

May 14, 2024

Disaggregated data are critical to ensuring all of New York’s children and families have equitable access to the services they need to thrive. By understanding who is and who is not being served by the state’s early childhood systems, we can better identify and address systemic inequities. 

New York’s children’s behavioral health system is complex, with minimal disaggregation of access and utilization data. While a lot of data are available at a regional- or county-level, few indicators are disaggregated further by important demographic categories like race, gender, or age group. These data limitations inhibit the State and community-based providers from identifying and meeting the unmet needs of children in the state, and prevent parents, advocates, and community stakeholders from being fully informed about the services they need in their communities.

This fact sheet is part of a collection that explores the state of data disaggregation in four of New York’s key early childhood systems: Early Intervention, Child Care, Pre-Kindergarten & Preschool Special Education, and Behavioral Health. Please click here to view the full set, including recommendations for state and local leaders, as well as advocates, on ways to improve the collection and public reporting of disaggregated data across systems.

Click to Read More and/or Download»

New York State Budget 2024-2025

April 23, 2024

New York had an opportunity to transform the way we serve children. However, with the notable exceptions of Early Intervention and continuous Medicaid coverage for children from birth to six, our elected officials mostly opted for investments that are for one year only.

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Continuous Medicaid Coverage Factsheet

February 14, 2024

Continuous Medicaid coverage improves health outcomes for mothers and children, which boosts the health of every community.

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Executive Budget Proposal 2024-2025

January 23, 2024

Children need bolder action in the New York State budget that changes systems in ways that are effective and equitable.

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2024 Policy Priorities

January 5, 2024

Children in New York need bold legislative action to make the systems that serve them effective and equitable.

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2023 Impact Update

January 1, 2024

The Children’s Agenda is a bold voice for children. We are pleased to share highlights of what we achieved for children in 2023 by making democracy work for kids.

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Family Voices: Monroe County Parent Poll December 2023

December 13, 2023

Families in Rochester and Monroe County are experiencing widespread financial hardship and family financial stress that impacts children.

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Strengthening the Healthcare Safety Net

July 14, 2023

Essential safety net hospitals serve historically marginalized neighborhoods and communities of color. Years of disinvestment and the current financing system weaken the ability of these hospitals to provide equitable care. New York needs a permanent solution to fix the underinvestment and ensure safety net hospitals receive the funds they need moving forward.

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Lowering the Maternal Mortality Rate

July 14, 2023

Maternal mortality is far too high in New York and disproportionately affects Black women, regardless of their prenatal care, income and education levels. Preventive and supportive care must be systematically available and easily accessible to lower maternal mortality. Half of pregnancies in New York are covered by Medicaid, making Medicaid a key lever decreasing the number of women who die during pregnancy or childbirth.

The research shows that Black women are 5 times more likely to die from pregnancy-related causes than White women, and Black infants are 2 times more likely to die than White infants.

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Family Voices: Monroe County Parent Poll March 2023

March 22, 2023
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2022 Impact Update

January 1, 2023

The Children’s Agenda is a bold voice for children. We are pleased to share highlights of what we achieved for children in 2022.

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New York State Medicaid Waiver: 2022 Report Card

October 16, 2022
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Home Visiting Factsheet

October 10, 2022

Early childhood development has lasting impacts throughout a child’s lifetime. From birth through the first few years, children develop critical foundations in cognition, language and

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Supporting Youth Mental Health in Schools

June 14, 2022

Prior to the COVID-19 pandemic, the Centers for Disease Control and Prevention found 1 in 5 children had a mental health disorder, but only about 20% of those children received care from a mental health provider.
Mental health-related emergency department visits increased 24% for children 5 – 11 years old and 31% among adolescents 12 – 17 years old during the first 8 months of the pandemic.
Late in 2021, the American Academy of Pediatrics, American Academy of Child and Adolescent Psychiatry and Children’s Hospital Association declared a national emergency in child and adolescent mental health.

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Children Left Out, Again

April 28, 2022

New York State has drafted a proposal that will be submitted to the US Department of Health and Human Services, requesting flexibility in how it uses Medicaid funds. Known as a “Medicaid waiver,” the proposal includes a request for $13.52 billion to be used over five years. The intent is to design innovative ways of using Medicaid funds that will promote health equity and address health disparities. Despite the fact this waiver is focused on equity, the investments in the current proposal are not aligned with the needs of the poorest and most diverse population of New Yorkers who rely on Medicaid: children.

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